An undiagnosed condition, or a difficult to diagnosed condition, is one where someone experiences symptoms but does not have a formal diagnosis, despite being investigated by their doctors. In some circumstances, a person may have definite symptoms but further investigations do not point to a clear diagnosis.
Although being diagnosed with a serious condition can be hard, not receiving a definite diagnosis can be even more difficult to deal with.
Feeling anxious about being undiagnosed is perfectly understandable. Doctors may not be able to give you answers about the future, including how your condition will progress, which may make you feel insecure. And while there are often support groups for people diagnosed with conditions like multiple sclerosis or epilepsy, if you do not have a diagnosis you may not be able to benefit from these as a source of support.
Listen to your body.
You know your body better than anyone else, and if you feel something is wrong or different, don’t just ignore it. Write down any new symptoms, noting the date and circumstances, as this can be really useful towards getting a diagnosis.
If you feel your concerns are not being met, don’t give up.
At 23MD, we listen to our patients, and together can make a plan to include appropriate investigations that may have been overlooked. We use the newest and most scientifically proven investigations available to try to enable a diagnosis. This might include the use of blood tests for hormones, inflammatory markers, or even food sensitivities, scans and other investigations that you may not have considered before discussing your symptoms in detail.
We at 23MD genuinely believe that each patient is an individual who requires time and attention, with appropriate investigation and treatments to meet their particular needs, and realise a state of full wellbeing.
What if I don’t get a diagnosis? It is possible that you will never be formally diagnosed, and the cause of your symptoms will remain unknown. While this can be worrying or unsettling, you may still be able to take advantage of the treatments and benefits available to patients who do have a diagnosis.